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Our Girl With the Mystery Condition

Episode 5 of 6

Katie has Megalencephaly - a growth development disorder. However, she also has other unexplained symptoms including fatty tissue that's gathered around her face.

The nine-year old with a condition so rare it doesn't have a name.

Katie has Megalencephaly - a growth development disorder. However she also has other unexplained symptoms including fatty tissue that's gathered around her face.

Her mum has been told the mystery condition is so rare that when they are able to identify it, they'll name it after Katie.

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5 minutes

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